- It's not the cough...
- Talk, tell, transform
- Coming together
- Working together
- Learning together
- Easy breathing
- Speaking Up
- Dignity and respect
- Getting involved in research
- Working smarter
- Why teach English?
- After the fires
- Dangling conversations
- Sheffield Carers' Voices 2
- NHS Lothian telehealth stories
- In the lead
- Stories from the National Patient Safety Agency
- Telehealth stories
- Stories of recovery from La Trobe University
- MND stories
- NHS Leeds PPI stories
- Sheffield Carers' Voices
- End of Life Care
- Stories from the University of Liverpool
- Stories from the Isle of Wight Stroke Club
- Stories from the University of Nottingham
- Stories from the University of Huddersfield
- Communities of health
- Stories from the NHS Institute for Innovation and Improvement
- Stories from junior doctors in training
- Stories from the Saskatoon Health Region
- Arthur & Co.: Stories about living with Arthritis
- Society of the Holy Child Jesus
- Healing journeys
- Work in Progress
- Caring for vulnerable babies: the reorganisation of neonatal services in England
- Interpreting Tales
- Having a stroke: being a parent
- Stories from Connecting for Health
- Stories from the RCN quality improvement programme
- Carers' Resource, Harrogate, Craven and Airedale
- Stories from the RCN
- Reconnecting with life: stories of life after stroke
- Stories from Pilgrim Projects
- Stories from the Working in Partnership Programme (WiPP)
- Stories from NHS Tayside
- Stories from NEYNL
- Stories from the Heart Improvement Programme
- Charles Bruce's stories
- Grace and Joe Desa's stories
- Alison Ryan's stories
- David Clark's stories
- Emma Allen's stories
- Monica Clarke's stories
- Ian Kramer's stories
Dignity and respect
In order to build dignity and respect for service users into the training of professionals, we need to know what stories of dignity and respect service users carry with them.
The stories in the Dignity and respect series have been created in a series of workshops that began in November 2011. The series of workshops is sponsored by Manchester Mental Health and Social Care Trust, and is intended to explore the experiences of service users. The Patient Voices reflective digital stories created are being shown at Board meetings in order to draw those present back to the stories behind the decisions they take, and are being used in the recruitment process of staff up to and including the level of Chief Executive, thereby bringing service users' experiences into a key area of service provision and development. This project with mental health service users will also feed into the development of learning materials for new practitioners.
Learning to be a mum was hard for Brenda. Her cries for help went unnoticed and eventually led to a spiral into drug and alcohol addiction. The support of her own mother enabled her to avoid her children being taken into care, but it wasn't until her daughter became pregnant that she broke the cycle of addiction and became ‘clean'. Now a loving and involved grandmother, Brenda has learned from her daughter how to be a mum.
Overcoming obstacles at school was hard for Dee because her dyslexia wasn't understood. But she has learnt that the key to achieving goals is mental, physical and spiritual preparation. Her determination to overcome the set backs she faced when growing up have helped her to become stronger and given her courage to achieve her goals and pass on her strength to others.
After thirty years of living with a mental health condition, Cathy has realised that her recovery isn't about achieving a ‘perfect life', but one that enables her to get through the difficult times and treasure the happy times. The Manchester Mental Health and Social Care Trust has supported Cathy in her recovery and becoming a tutor at Recovery Education has given her an insight into other people's journeys, as well as her own.
Like any mother, Lindsey expected her son to follow the normal ‘rites of passage' – 18 th and 21 st birthdays, A levels, graduation, driving test and girlfriends. But Tom's behaviour was becoming increasingly bizarre and eventually Lindsey arranged for Tom to be sectioned. Diagnosed with schizophrenia and with no insight into his condition, Tom remains in hospital and Lindsey has become a fighter for causes in his name, determined never to give up on him.
For Nighat, the days can be long, silent and filled with nothing but loneliness. Every day is just another test of her determination to survive, another challenge to her dignity and self-respect as she engages with more and more services that try, but seem to fail her.
As someone who has needed and benefited from support himself, Alan is well-placed to see his partner's need for support – so why is it not available from other services for her when she needs it?
Chris' wife and daughter were mental health service users. When they commit suicide on the same day, Chris' tragedy is compounded by the responses of the Police and the support services, but now he is at last finding ways to move forward.
For many years, Justin's life was a cycle of alcohol abuse, homelessness, and life on the streets. He lived on the streets, eating from bins, and struggling to find a way to get back from a life full of blanks. Eventually, being sectioned put him into the start of a process through which he has struggled and grown until he is now using his experience of life on the streets to help others.
The struggle to obtain and provide the right, compassionate and loving care for his parents is, like so many other struggles for dignity and respect, and exhausting and debilitating one for Henri. But it is a struggle he pursues with love and devotion, and describes lyrically and poetically.
Dawn is both a mental health service user, a carer for a mental health service user and a mother. Her experience is one of isolation and lack of recognition for the complex nature of the caring she delivers and the care she needs. Her response has been to use social networking to build a community of experience and practice at: http://www.facebook.com/MakingMentalHealthPositive and https://twitter.com/MMHPuk
By the time a wrong diagnosis is reversed, Anne has had to survive many years of physical and mental side-effects from an inappropriate treatment regime. Yet, somehow, she has maintained her own dignity, kept the respect of her family – and prevailed.
When a beloved son asks whether your bipolar is his fault, how do you answer? With dignity, self-respect and gratitude for the part your son has played in helping you through the journey of recovery.
Suddenly, one day, Graham is in a different mental place. His head feels different, the world is a different and challenging place – and recovery seems a distant goal. But Graham is a fighter at heart, determined to get through this battle – and to share his experiences so that others can get through the struggle as well.
Michael has been labelled and put into many different boxes over the years because of his sexuality and HIV status. He cares for his parents for many years, but the system needs to show its respect for his efforts by matching them with its own. Where is that support and respect in the last weeks of his mother’s life?
Terri’s life had been a roller-coaster ride of stress, and anxiety that came to rule her life, creating a cycle of self-destruction and self-harm. Only when she starts Dialectical Behavioural Therapy (DBT) does she begin to learn how to practise and apply skills that allow her to take back the control, dignity and self respect that her borderline personality disorder had denied her.
Is the denial of someone's illness the ultimate removal of dignity and respect? Bob's alienation, pain and experiences are put aside by professionals for forty years before his mental health issues are finally acknowledged with a diagnosis. Only then, with good support from his Mental Health Trust and restored faith and faith in himself, can he become part of the world again.