- Talk, tell, transform
- Coming together
- Working together
- Learning together
- Easy breathing
- Speaking Up
- Dignity and respect
- Getting involved in research
- Working smarter
- Why teach English?
- After the fires
- Dangling conversations
- Sheffield Carers' Voices 2
- NHS Lothian telehealth stories
- In the lead
- Stories from the National Patient Safety Agency
- Telehealth stories
- Stories of recovery from La Trobe University
- MND stories
- NHS Leeds PPI stories
- Sheffield Carers' Voices
- End of Life Care
- Stories from the University of Liverpool
- Stories from the Isle of Wight Stroke Club
- Stories from the University of Nottingham
- Stories from the University of Huddersfield
- Communities of health
- Stories from the NHS Institute for Innovation and Improvement
- Stories from junior doctors in training
- Stories from the Saskatoon Health Region
- Arthur & Co.: Stories about living with Arthritis
- Society of the Holy Child Jesus
- Healing journeys
- Work in Progress
- Caring for vulnerable babies: the reorganisation of neonatal services in England
- Interpreting Tales
- Having a stroke: being a parent
- Stories from Connecting for Health
- Stories from the RCN quality improvement programme
- Carers' Resource, Harrogate, Craven and Airedale
- Stories from the RCN
- Reconnecting with life: stories of life after stroke
- Stories from Pilgrim Projects
- Stories from the Working in Partnership Programme (WiPP)
- Stories from NHS Tayside
- Stories from NEYNL
- Stories from the Heart Improvement Programme
- Charles Bruce's stories
- Grace and Joe Desa's stories
- Alison Ryan's stories
- David Clark's stories
- Emma Allen's stories
- Monica Clarke's stories
- Ian Kramer's stories
MND stories
These stories are told by people with MND and their carers. They will be used within elearning materials that are intended to illuminate the experiences of people with MND for those engaged in MND research.
Motor Neurone Disease tops Jean’s list of diseases not to have. Diagnostic challenges combine with the absence of treatment or cure. But there is one thing that people with MND can do to help themselves and others…
As Margaret and David face the end of David’s life, and the end of their journey together, Margaret reflects on the complexities and challenges – as well as the rewards – of caring for David at home.
Jean is a medical professional, and also a person with Motor Neurone Disease (MND). Whilst this means she knows the seriousness of her condition, it also means that she understands the crucial importance of patient participation in research to advances in understanding and treatment.
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